Hemophilia, a blood-coagulation disorder that affects more than 20,000 in the U.S., impairs the body's ability to stop bleeding when a blood vessel is broken. Though there is no cure as yet, with medical treatment, most who have the disease can now live a normal life.
This, from Altadena's Donna Pett:
Last summer, we experienced one of the most exciting events in our life – the birth of our first grandchild, Greyson James. He is now a year old –beautiful, smart, active, running all over – and he has hemophilia.
He was diagnosed at birth with Hemophilia, Type A – severe. The family has participated in educational events that informed us about hemophilia and the huge strides being made toward its cure. Since that time, we have learned a lot about hemophilia. We know that Greyson can have a normal active life with a full life expectancy. His mom and dad, Matti and Dave, now give him infusions of Factor 8 three times a week. This allows him to maintain a very normal and active lifestyle.
Other than having a little port over his right breast, Greyson is like any other 1 year old!
Facts about hemophilia:
- Approximately 20,000 people are living with hemophilia in the United States.
- Hemophilia is a life-long condition. Currently there is no cure, but scientists are actively engaged in finding cures and improving treatments.
- Your contribution to the National Hemophilia Walk will help fund research toward better treatments and cures.
The walk takes place on Saturday, October 27, 9 am, at the Rose Bowl; funds will support the National Hemophilia Foundation.
You can find additional information about the walk here. If you'd like to sponsor Greyson's team, visit here.
