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Walk for Hemophilia Awareness and Cure, Oct. 27, Rose Bowl

Altadena resident Donna Pett asks for your support -- and here's why.

Hemophilia, a blood-coagulation disorder that affects more than 20,000 in the U.S.,  impairs the body's ability to stop bleeding when a blood vessel is broken. Though there is no cure as yet, with medical treatment, most who have the disease can now live a normal life. 

This, from Altadena's Donna Pett:

Last summer, we experienced one of the most exciting events in our life – the birth of our first grandchild, Greyson James.  He is now a year old –beautiful, smart, active, running all over – and he has hemophilia. 

He was diagnosed at birth with Hemophilia, Type A – severe.  The family has participated in educational events that informed us about hemophilia and the huge strides being made toward its cure.  Since that time, we have learned a lot about hemophilia.  We know that Greyson can have a normal active life with a full life expectancy.  His mom and dad, Matti and Dave, now give him infusions of Factor 8 three times a week.  This allows him to maintain a very normal and active lifestyle. 

Other than having a little port over his right breast, Greyson is like any other 1 year old! 

Facts about hemophilia:

  • Approximately 20,000 people are living with hemophilia in the United States.
  • Hemophilia is a life-long condition. Currently there is no cure, but scientists are actively engaged in finding cures and improving treatments. 
  • Your contribution to the National Hemophilia Walk will help fund research toward better treatments and cures.

The walk takes place on Saturday, October 27, 9 am, at the Rose Bowl; funds will support the National Hemophilia Foundation.

You can find additional information about the walk here. If you'd like to sponsor Greyson's team, visit here.  

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